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Q & A with Brian Hom

July 2, 2009 — Gina Clowes (Views: 132)

Q & A with Brian Hom

I know that many of you will have questions about BJ’s story so I’m grateful to share my interview with Brian Hom with you.

Gina Clowes: Brian, thank you so much for talking with me. I know it must be difficult but you’ve also shared with me that you’re determined to share BJ’s story in the hopes of protecting others.

Brian Hom: Yes, and I am in a unique situation in that I have two other sons at home, BJ’s younger brothers, who also have peanut allergies. I have to protect my son’s.

GC: Let’s talk a little bit about your family’s history. Do you or your wife Kathy have allergies?

BH: No.
GC: How did you find out that BJ had food allergies?

BH: When he was two years old, he ate something that he reacted to in a restaurant with hives, some redness and swelling on his face. A few years later at preschool, he bit into a piece of candy and had another reaction. Neither time did he have breathing problems.

GC: Did he ever have to go to the emergency room for treatment of his food allergies?

BH: Oh, no.

GC: Was he prescribed an Epi-Pen?

BH: He did when he was younger, but later it seemed manageable without it. We figured an epi-pen was necessary for extreme reactions.

If I had any idea or would have seen what happened that day, I would have carried it with me. I can’t tell you how much I wish he was going to get a second chance. I never had any idea that something like this could really happen.

GC: You told me that BJ’s anaphylactic reaction in Mexico was completely different from the few previous reactions that he had. How so?

BH: His previous reactions were visible reactions on his skin. He’d get hives, and redness. He had never, ever had this difficulty breathing. This last time, he had no hives. In fact, he was completely pale.

GC: When BJ asked you for the cough drops, did you think that he might be experiencing an allergic reaction?

BH: No, no. He asked for cough drops occasionally. Looking back now though I wonder if these could have been other milder reactions that even he was not aware were allergic reactions.

GC: Had BJ ever complained before about his throat hurting as a symptom of food allergy?

BH: No, never. We were so used to see a rash on his face.

GC: What did you think when BJ asked for the cough drops?

BH: I was thinking: How could he have a sore throat? We just flew from San Jose and he was fine.

GC: What types of reactions had BJ had in the past?

BH: He would always get hives. His face would get red and swollen. We thought that this would be the way reactions would happen for him.
This [last] reaction was so dramatically different. He had no hives, or redness. Yet this time he died within minutes of finishing his last meal.

GC: Did you believe that BJ had a “mild” peanut allergy?

BH: Yes. I had heard stories of people dying but I didn’t think we were dealing with that same thing. BJ had had hives on his face once and swollen lip but we gave him Benadryl and they went away.
Now, I meet people who have kids with allergies, and I think they’re in denial about how serious it can be. Maybe I was in denial too. We never ever imagined that anything like this could happen.

GC: Do you believe you know what caused BJ’s anaphylaxis?

BH: Yes, it was a chocolate mousse dessert from the buffet. I warn families now to avoid buffets.

We only put this together later when my other son started to experience itching and swelling. He was quickly treated with an injection and some pills. (We assumed the injection was epinephrine.) BJ and my son Steven both ate the same dessert.

GC: What do you think or feel when you hear the backlash against food allergy families or accommodations for these children?

BH: Let them lose a child and see how they feel and they’ll see it differently.

It’s easy to say “My rights are being violated” because you don’t really believe it’s real and so you don’t understand the reason for the accommodations.

GC: How are you and your family doing?

BH: It’s so painful. My sons are sad, sometimes angry, sometimes scared.

There is not a day that I don’t think about him. My wife and I are heartbroken. We visit him every week at the cemetery. The lifelong living without your child and having to bury them. You don’t want your worst enemy to have to experience this.

GC: Are your sons being given appropriate accommodations in school?

BH: Yes, they are. Thank you. And we feel better about that now.

We planted a tree and put a memorial there to Brian James Hom II and we had the plaque state that he died of an allergic reaction to peanuts. We want people to know.

GC:
What are your hopes for the future?

BH: That there is going to be a cure. That nobody out there has to die from a peanut allergy or a food allergy.

GC: Your family’s story is heart-breaking. I know it can’t be easy to talk about this. Why do you do it?

BH: I think of him constantly so whether I talk about it or not, it is always there. If telling my story will help someone else, I want to do that.

Sharing this story and having it happen are so different. This shouldn’t have to happen.

GC: What would you like to share with other parents?

BH: In this case, the loss of my son to peanut allergy and witnessing his death in front of our eyes was horrific. We were totally helpless.

I still remember like yesterday being by his side in the delivery room with my wife when he was born and I will always remember being by his side with my wife when he died. The total pain, and sorrow of setting up the funeral services and burial within days of his death were unbearable.

Now, I have to do everything in my power to protect my younger sons. Their brother died so that these guys can live. It is a lesson learned for us and for them. We live daily with the loss but if I can prevent this from happening again to anyone, anywhere, I want to do that.

A Parent’s Worst Nightmare

July 1, 2009 — Gina Clowes (Views: 225)

Today is a sad anniversary for the Hom family. Please say a prayer for them and be grateful that Brian is willing to share their heartbreaking story to help keep our children safe.

A Parent’s Worst Nightmare

By Brian Hom

I was invited to share the story of my 18 year old son BJ Hom (photo above) who passed away last summer on July 1, 2008 from an allergic reaction from peanuts while vacationing in Mexico.

BJ was a loving son and brother and a good loyal friend to all who knew him. As our first born son, he never asked for much. He was quiet and kind and very content with a simple life. BJ was known for his shy smile. If you tried to make him laugh, he would look at you indirectly and crack a small smile.

Last summer, our family planned a very special vacation to Los Cabos, Mexico to celebrate BJ’s high school graduation and his 18th birthday. We had no idea then that the vacation we looked forward to so much would turn out to be the worst time of our lives.

It started on July 1, 2008. We were so excited as we landed in Mexico at 7 pm and quickly checked into the resort. We put our suitcases in our room without unpacking and headed straight to a buffet dinner at the resort restaurant around 8:45.pm. We finished a quick and uneventful meal by 9:20 and decided to walk around the resort to look at the pool and the beach.

It was just as we started our walk that BJ spoke his last words to me, “Dad my throat hurts. Can you buy me some cough drops?”

I bought BJ some cough drops from the resort gift shop and we separated after that. My other sons and I headed to the resort arcade while BJ stayed with my wife Kathy.

BJ told her “Mom, I don’t feel well. Can we go to the room?” So they headed toward the elevator, but things quickly took a turn for the worse. BJ’s lips turned blue, his face turned very pale, and he was grabbing his chest as he could no longer breathe. Kathy led him to a couch in the lobby to sit down but he collapsed on the floor of the lobby before he could make it there.

Minutes later, a lady came rushing in to us at the arcade and said “Your son is very ill and you need to come to the lobby!” I was very concerned but I didn’t know what to think. I thought he might have been choking on something, maybe on the cough drop.

When I got there, I couldn’t believe what I saw. BJ’s eyes were open but he couldn’t talk and was gasping for air. The hotel staff was frantically trying to give first aid assistance. The paramedics arrived within ten minutes and continued in their attempts to help my son.

At one point, we knew he stopped breathing so my wife and I kept asking where the doctor was. When the doctor arrived, they continued with frantic attempts to revive him with oxygen and CPR. The paramedics gave us hope that he might be breathing again. So we kept asking the doctor “Is he going to be okay? ”

Finally, the doctor responded to us. He hesitated for a minute, took a deep breath and said “Sorry” Then he closed my son’s eyes and covered his head with a blanket. There wasn’t much else he could do.

This was the worst and most heartbreaking day in our lives. Kathy and I felt like someone had reached into our chest and ripped out our hearts. To this day, I still can’t believe it really happened. But it did happen and that is why I am on a mission now. I have two other boys at home, BJ’s brothers, who have peanut [and sesame] allergies too. I want the world to know that food allergies are real and this is what can happen if you are not prepared to deal with them.

This article is dedicated to the loving memory of my son Brian James Hom II.

Part II tomorrow

Peanut Allergy Reaction on YouTube (Proceed with Caution)

June 28, 2009 — Gina Clowes (Views: 1023)


I’ve been sent this link several times. One person said that they suspected it was a hoax. I didn’t get that impression at all. In fact, I found it extremely upsetting.

I don’t think he realizes that reactions can vary! You cannot predict the course of any allergic reactions based on how past reactions have progressed.

I hope a physician will write to him and warn him to get a prescription for epinephrine and to inject himself should this ever happen again. Anyone?

Watch at your own risk~

Your thoughts?

Sunshine Cookies (Food allergy friendly)

June 28, 2009 — Gina Clowes (Views: 725)

Here’s a food allergy-friendly cookie that anyone can make and the leftover decorations can be served as safe snacks!


Sun Cookie!

Sugar Cookie Dough
Fritos or safe pretzel sticks
Fondant or colored taffy
Red Licorice or icing

Prepare your favorite sugar cookie dough. We used Cherrybrook Gluten Free Sugar Cookie Mix.

Sort through your corn chips to find 6 - 10 for each cookie that are somewhat flat and similar in size. Arrange them like a starburst and then place a round ball of cookie dough in the center. Gently press down until the dough is covering about 1/3 of each corn chip. Bake as usual.

Allow to cool before removing from cookie sheet. Frost each cookie with yellow tinted frosting. Then cut round circles out of taffy or fondant to make mock sunglasses. Finish with a licorice smile!

Fantastic Food Allergy Dining Experience

June 19, 2009 — Gina Clowes (Views: 994)

We travel to NYC for medical care every few months with my food allergic son (more on that later) and I usually check in with Allergic Girl for some tips on dining out. This time I just popped over to her Please Don’t Pass the Nuts Blog and when I read about Dos Caminos Third Avenue, it seemed like the best place to start.

I called on Monday to inquire about dinner on Wednesday. The hostess immediately offered to transfer me to the chef (even at 11:45 am). I spoke with Chef Anthony who patiently went over all of the ingredients of various food items with me. Even though my son avoids milk, wheat, egg, peanuts, tree nuts, seeds, fish and shellfish, we were able to decide on a “safe” menu. Anthony said that they would either purchase or set aside some steak or chicken without marinade depending on what my son wanted to order.

My son decided on chicken this time, so per Anthony’s suggestion, I called back on Tuesday and asked him to set aside a chicken breast for my son. Chef Anthony explained that he would not be there on Wednesday night but that he would make sure that the chef on duty understood how to cook for my son.

We arrived in the city the next day for my son’s appointment and later found that our car had been towed! So when we finally made it to the restaurant, we were 30 minutes late for our reservation. “Not a problem” we were told as we were promptly seated.

Not one but two waiters came to greet us! They informed us that they were aware of our special needs (-without out me saying anything! They must have flagged our reservation.) and that they were going to take good care of us. WOW!

We ordered chips and salsa after reconfirming the ingredients. Delicious hot corn tortillas chips straight from a dedicated fryer with three different kinds of freshly made salsa–most “safe” for my son. A mild roasted tomato variety was his favorite.

Then Chef Andrew came out to welcome us and to reassure us that Chef Anthony had left very detailed instructions on my son’s meal. We went over this again as well as some options for oils and vinegars they had available for salad dressing.

So my son had:
Fresh and hot Corn Tortilla chips with Roasted tomato salsa
Romaine lettuce salad with extra virgin olive oil and apple cider vinegar
Beautiful, lightly seasoned pan seared chicken breast (cringe: ds also had ketchup with this)
Corn on the cob –grilled separately and seasoned with salt and pepper
Plain Steamed rice (The rice and corn were cooked separate for my son as they usually season these.)
Barq’s Root beer to drink

No wheat, dairy, egg, peanuts, tree nuts, sesame, fish or shellfish and fabulous!

My husband and I also had wonderful dinner, truly delicious Mexican food. The service could not have been better.

We will make this a regular stop on our trips to NYC and for those of you who travel there for fun or for medical care, I’d highly recommend it. My son (8 years old) said that “on a scale of one to ten, I’d give it a 15″ and I agree!

Please do your homework though: call, explain, reconfirm and then prepare for fantastic dining experience!

Dos Caminos Third Avenue

Do It Yourself Allergy Testing?

June 16, 2009 — Gina Clowes (Views: 912)

Would you test for environmental or food allergies with a home testing kit? There are at-home tests for allergy, gender, urinary tract infection, anemia, ph level and more. Many of these tests are FDA approved. Does this sound like an option for you? Read more here.

Among the problems doctors cited with the test were the higher reliability of skin tests over blood tests, the fact that allergies might not be a person’s problem in the first place and the fact that the 10 allergens tested for might not be relevant to people who live in certain parts of the country.
And as allergy advocate Gina Clowes noted, the risk of a false negative on a food allergen could lead someone to try a food they were allergic to, with potentially fatal results.
“Allergic symptoms can run the gamut from annoying to life threatening,” she said. “If you’re having serious symptoms, for me or my children, only a real M.D. would do when diagnosing or treating them.”

Parents Against Junk Food

June 15, 2009 — Gina Clowes (Views: 281)

You might like this website: Parents against Junk food. A lot of allergy parents work with their districts Wellness Committee since their goals are often aligned. There is SO much food in schools today. How did we get to a point where we are eating snacks and cupcakes for birthdays, St Patricks Day, 100th day and more. Ugh, with 6% or more of children with food allergies and up to 20% of American Children overweight or obese, we really need to take a second look at all of this food in the classrooms.

There are lots of ways to celebrate and they don’t have to involve food!

We are devoted to eliminating junk food from our public school system. No sodas. No candy bars. No chips. No processed lunch or foods of minimal nutritional value. Let's ask our public schools to feed both body and mind properly, to take seriously their role as guardians of our children's health and welfare. It is time to take the corporate profit out of school lunches and replace it with common sense, good nutrition, and the love and care that our children surely deserve.

Christopher Kimball
Founder & Editor, America's Test Kitchen

Hypoallergenic Shampoo

June 10, 2009 — Gina Clowes (Views: 314)

It’s surprising to see how often food ingredients are used in shampoo–especially nut and seed oils. If you’re dealing with a nut or peanut allergy, these personal care products can cause a skin reaction. In fact, some studies have found that creams containing peanut oil may have been what initially exposed peanut allergic patients to peanut. (leading to the allergy)

We’ve used several over the years including unscented California Baby, and Vanicream’s Free and Clear Shampoo, but my overall favorite (and the one we use now) is Kirkman Labs(I’m a huge fan of Kirkman Products) Kleen Hypoallergenic Shampoo. I ordered their sunscreen too for the first time so we’ll see how that goes!

If none of these works you can always try a No Poo Do!

Helping Adults “Get” that Food Allergies are a Matter of Life and Death

June 7, 2009 — Gina Clowes (Views: 872)

When your child is diagnosed with food allergies, you soon find food is everywhere! The lady at the bakery counter is handing your child a cookie, the bus driver is passing out candy treats, the coach is doling out snacks after soccer practice, and the list goes on. Teachers, baby sitters, and other caregivers need to know how to keep your child safe, but even your sister-in-law, your son’s coach or your neighbor can put your child at risk if they don’t understand food allergies.

Adults who interact with your allergic child need to know that food allergies are real. Some will grasp this easily. For others, the learning curve is steep.

Sadly, the majority of moms I hear from report a lack of support and understanding from family and friends. Until the public is well informed about life-threatening food allergies, it’s up to us to begin the education process.

You’ll want to start with an overview of food allergies. My experience is that it’s better to provide published information rather than explaining food allergies in your own words. It is pretty amazing that a bite or tiny smear of an everyday food can create serious allergic reactions. When moms deliver this information, sometimes there is so much anxiety, they either scare people or they’re dismissed by others as over reactive.

Click here to read my entire article.

Food Allergy Safe Red Velvet Cake!

June 5, 2009 — Gina Clowes (Views: 302)

CherryBrook Kitchen’s latest newsletter has a terrific special on their regular pancake mix, tips for safe camping and a delicious recipe for Red Velvet Cake–peanut nut dairy and egg free! We use all of their gluten free mixes. Yum!

Click here for the newsletter and recipe!


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